Living with CFS/ME is difficult. Extreme tiredness and other physical symptoms make it hard to carry out everyday activities and find enjoyment. You may have to make some major lifestyle changes. CFS/ME can also affect mental and emotional health, and have a negative effect on self-esteem. Asking family, community, and friends for support may help a person’s ME.
A disease characterized by profound fatigue, sleep abnormalities, pain, and other symptoms that are made worse by exertion.
What are the symptoms of ME/CFS?
- Non-restoring sleep
- Brain fog
- Orthostatic intolerance
- Sore throats
- Swollen lymph nodes
- Temperature, sound, and light sensitivity
- Fast or irregular heartbeats
- Occurs more commonly in women
How does ME/CFS start?
- Problems with the immune system
- Hormone imbalance
- Viral infections, such as glandular fever
- Bacterial infections, such as pneumonia
- Mental health problems, such as stress & emotional trauma
- Physical or environmental stressors
How is ME/CFS treated?
- There are no FDA approved treatments available for ME/CFS
- Treatment is focused on relieving symptoms & providing relief
- Cognitive behavioral therapy (CBT)
- Structured exercise program called graded exercise therapy (GET)
- Medication to control pain, nausea and sleeping problems
Do people ever recover?
- CFS gets better over time, although some people don’t make a full recovery
- There will be periods when symptoms get better or worse
- Most people, over time and with effort are able to return to normal lives.